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Bedfordshire and Luton Children's Epilepsy Team

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The paediatric epilepsy nursing service supports effective diagnosis and care of children and young people with a diagnosis of epilepsy within the community setting. The service helps support children, young people and their families manage the symptoms of their epilepsy avoiding unnecessary hospital admissions and attendances. The team support from birth to preparing for adulthood and transition into adult services.

How to deal with a first seizure

This video shows a practical demonstration of how to manage a seizure. Hear from parents, carers and healthcare professionals for practical tips on how to manage seizures and who you need to inform.

Complex epilepsies

Hear from our epilepsy specialist team and a parent to understand the impact of complex epilepsy management. Learn about some of the additional considerations needed when treating complex epilepsies. 

Culture and epilepsy

Hear from parents discussing how a diagnosis of epilepsy can be difficult, especially when the beliefs and culture of your community may differ from the medical team. Hear their supportive advice about how to manage this as a parent or carer. 

Diagnosis of epilepsy

Hear from our epilepsy specialist team discussing what epilepsy is and the resources that are available to you to understand an epilepsy diagnosis. You will also hear about the information that the team provide to support your child to live well with a diagnosis of epilepsy. This video contains lots of useful safety advice and signposting to important information.  

Lifestyle and safety

Safety measures are very important when your child has received an epilepsy diagnosis. Watch this video for practical advice from the specialist team and parents. 

Understanding an electroencephalogram (EEG)

Learn about the importance of an EEG, the procedure that your child will undergo as part of this test and how best you can prepare your child for it.  


Last reviewed: 1 November, 2024

Information

Who can help

If you have any questions or concerns about your child’s epilepsy, a health professional in our team will be able to offer advice and support.

Contact us for advice and support

Have your say

Please tell us about your recent experience with any of our services by answering a few simple questions. We want to hear about what you felt went well and what you think we could do differently. 

Your voice makes a difference and helps us improve our services for you and other families.

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